Last week, I posted an entry by Shannon, mom of Marie who is dealing with a Mitochondrial disease called Leigh's. You can read that entry here.
There was a request for information about what charities are involved with helping this type of disease, Shannon recommends UMDF.
There was also a request for updates on Marie and her family which Shannon says you can find here.
Blessings to Shannon - you are a beautiful woman and mother - and to your family. I wish the best possible for your littlest girl.
